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Expanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder.

TitleExpanding the Capacity of Primary Care to Treat Co-morbidities in Children with Autism Spectrum Disorder.
Publication TypeJournal Article
Year of Publication2018
AuthorsVan Cleave, J, Holifield, C, Neumeyer, AM, Perrin, JM, Powers, E, Van, L, Kuhlthau, KA
JournalJ Autism Dev Disord
Date Published2018 Dec
Keywordsairp, Attention Deficit Disorder with Hyperactivity, Autism Spectrum Disorder, Child, Delivery of Health Care, Female, Health Personnel, Humans, Male, Parents, Primary Health Care, Qualitative Research, Quality Improvement, Specialization

We examined barriers and facilitators to expanding primary care's capacity to manage conditions associated with autism spectrum disorder (ASD). We conducted semi-structured interviews with specialists, primary care providers (PCPs), primary care staff, and parents of children with ASD, discussing health/behavior problems encountered, co-management, and patient/family experience. Participants endorsed primary care as the right place for ASD-associated conditions. Specialists advising PCPs, in lieu of referrals, efficiently uses their expertise. PCPs' ability to manage ASD-associated conditions hinged on how behavioral aspects of ASD affected care delivery. Practices lacked ASD-specific policies but made individual-level accommodations and broader improvements benefitting children with ASD. Enhancing access to specialty expertise, particularly around ASD-associated behaviors, and building on current quality improvements appear important to expanding primary care.

Alternate JournalJ Autism Dev Disord
PubMed ID29982896
Grant ListUA3 MC 11054 / / Maternal and Child Health Bureau /