Beginning January 2019, the Autism Treatment Network (ATN) will transition the Registry from a limited access data registry to an open-access data set. After the transition to an open-access data set, all data currently contained in the Registry will become available to the public to download and utilize for research. The data will not contain any identifying information, nor any information that would allow investigators to determine the patient’s identity post-hoc.
Once the Registry fully transitions to an open-access data set, there will no longer be a formal review of proposals prior to providing access to the data for requesters to download.
During this transition period to an open-access registry, no new RFDs will be accepted and no data will be shared from the Registry. We will share and post updates regarding this transition process throughout the year.
We apologize for any inconveniences this may cause.