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Large Databases for Pediatric Research on Children with Autism Spectrum Disorder.

TitleLarge Databases for Pediatric Research on Children with Autism Spectrum Disorder.
Publication TypeJournal Article
Year of Publication2018
AuthorsKuhlthau, KA, L Bailey, C, Baer, BL, Coury, DL, J Law, K, Murray, DS, Razzaghi, H, Forrest, CB, Lipkin, PH
JournalJ Dev Behav Pediatr
Volume39
Issue2
Pagination168-176
Date Published2018 Feb/Mar
ISSN1536-7312
Abstract

OBJECTIVE: This article reviews the data available in 3 large databases for use in conducting studies of children with autism spectrum disorder (ASD).

METHODS: The article describes the data structure, data elements, and strengths and weaknesses of the 3 data sets.

RESULTS: Each of the 3 data sets, the Interactive Autism Network (IAN), the Autism Treatment Network (ATN), and PEDSnet have large cohorts of children with ASD. IAN has strengths in patient-reported measures, ATN in clinical characterization, and PEDSnet in health care encounters and electronic medical record data.

CONCLUSION: The data sets described here have potential for further studies that could help improve the care and well-being of children with ASD and their families.

DOI10.1097/DBP.0000000000000534
Alternate JournalJ Dev Behav Pediatr
PubMed ID29239865