|Title||Large Databases for Pediatric Research on Children with Autism Spectrum Disorder.|
|Publication Type||Journal Article|
|Year of Publication||2018|
|Authors||Kuhlthau, KA, L Bailey, C, Baer, BL, Coury, DL, J Law, K, Murray, DS, Razzaghi, H, Forrest, CB, Lipkin, PH|
|Journal||J Dev Behav Pediatr|
|Date Published||2018 Feb/Mar|
OBJECTIVE: This article reviews the data available in 3 large databases for use in conducting studies of children with autism spectrum disorder (ASD).
METHODS: The article describes the data structure, data elements, and strengths and weaknesses of the 3 data sets.
RESULTS: Each of the 3 data sets, the Interactive Autism Network (IAN), the Autism Treatment Network (ATN), and PEDSnet have large cohorts of children with ASD. IAN has strengths in patient-reported measures, ATN in clinical characterization, and PEDSnet in health care encounters and electronic medical record data.
CONCLUSION: The data sets described here have potential for further studies that could help improve the care and well-being of children with ASD and their families.
|Alternate Journal||J Dev Behav Pediatr|